Oh my. It’s almost unnerving to be sitting here thinking about what to write. It’s been so long, it almost feels as if I’ve kept things from you. How deceitful of me! {grin. Me, deceitful? What?} Know that it’s nothing personal. I’m not on a blogging strike, nor am I intentionally ignoring my lovely blog in favor of Twitter.
It can all be summed up to one word. Just one – Fatigue. Yep, the never-ending complete and utter physical exhaustion that is almost impossible to explain to anyone who hasn’t experienced it. “Fatigue? Oh, so you’re just tired right?” Yeah. Sure. Think being driven over a few times by a semi, right after getting the wind knocked out of you by a really fast and invisible soccer ball only to find out that you have the flu on top of it all. Yes, that right, the flu. And now you’re absolutely parched but you’re just so tired that it doesn’t feel worth it to reach across the table for your glass of water. Maybe just thinking about drinking will deliver that punch of H2O to all those cells that need it. No? Oh well, it doesn’t matter really. Chances are I’d forget about why I was supposed to be thinking about it anyway.
Needlessly I feel the need to explain that I’m not just tired. I’m wiped out. Drained. Of late, I’m even too exhausted to correct the people who assume that I’m simply tired.
I’ve also been herxing on and off for the past few weeks. A few good days here and there, but overall I’ve just felt “off”. Something doesn’t feel right. All the dots aren’t connected in my connect the numbers picture. Doing homework is hard, and that’s coming from a girl who actually enjoys doing homework. I know, it’s weird, but something about having it taken away from me when all I wanted was to be well again and go back to school just makes it mean something. It’s an accomplishment. And, I do take pride in what I complete and turn in. But lately, I’m falling behind. My to-do lists are longer at the end of the day than when I started. Somehow, that doesn’t seem very productive!
My mind feels like sludge. Every single joint in my body aches. It’s as if I’m stuck in sand, trying to climb out. Or maybe it’s more like the creaky Tin Man in the Wizard of Oz before Dorothy oils his joints. I’m not sleeping well. And my poor stomach still isn’t happy!
Yes, my friends this all points towards the inevitable. It’s Fall. My dreaded season. Everything gets worse from now until February. Fall and Winter are my worst months; I spent the rest of the year recovering from them and preparing for them to happen all over again. At least, that’s what it feels like.
Fall is here. If it wasn’t below 40 degrees outside and almost midnight I’d scream it. Maybe not from a rooftop, but I’d scream it all the same.
And yet, as each day that becomes more and more apparent, I’m trying to stay hopeful. This year might be different. This year I might break that pattern. This year is the first Fall/Winter that I’ll be treating the Lyme and other various infections beating the crap out of my body! Yay for that!
So, on that positive note I’ll leave you for the night.
Peace, healing, and sweet dreams, molly




2 comments
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October 9, 2009 at 9:57 am
Isabel
So sorry Molly that you are fighting the flu along with your other struggles. You definitely don’t need that.
I have been horrible about updating my blog. I even have a draft saved that I can’t seem to finish, but wanted to give you some hope. We started our lyme journey at about the same time. We have different struggles, but a lot of similarities.
I have seen GREAT improvement with just oral antibiotics. Just when I was ready to give up on my protocol, I started to have improvement in my cognitive abilities. I’m a different person than I was three months ago. I can’t seem to beat the daily migraines, but all of my other symptoms have improved or gone away completely.
I’m on 200 mg. of mino, 200 mg. of plaquenil (only for the last two months) and no supplements other than probiotics. I have gotten my brain back for a good six hours at least, every day. I’m sharp, I don’t stutter, I can finish my sentences and find my words. There is hope. Many people told me on the forums that I had no hope of recovery or improvement at the stage I was at without IV or years of treatment.
I hope you find your way through this soon. I felt like you not too long ago, and now when I have a bad day, it’s a reminder of how blessed I am with so many good days now. Stay positive and keep searching for the right treatment to give you relief. We’re all rooting for you!
Prayers,
Isabel
October 9, 2009 at 11:31 am
dizzygrl05
Hey Isabelle! I’ve been thinking about you, not seeing any updates lately. But, I can’t talk I’ve been the same way! Thank goodness, I don’t actually have the flu right now. Yet. It’s been going around me like a swarm though. First my mom, my friends, the kids I volunteer with, everyone. My supplements must be helping because so far I’ve been ok! *knock on wood*
Thank you for taking the time to give me that hope though!! I needed that. I’m so happy for you that things are going so well!! That’s amazing that you’re seeing such improvement. I only hope that it continues. I’ve seen some improvements. Being forced to be taken off all my meds this summer really caused me to go down hill I believe.
I’m on only 125 mg of azithro, and I’m on a natural antibiotic tincture called Cumanda. We’re hesitant on the antibiotics now because of my horrible reactions to the last two. I’ve been on the azithro since Feb or so I think though. I am on a LOT of supplements too. They all seem to be helping however. I can really notice when some of them are taken away if I run out too soon.
I’m seeing my LLMD next week, and I think we’ll decide whether or not to treat Babesia. But, that’s for another post : )
Wonderful to hear from you! Blog (((hugs))), molly