emily and isabelle, originally uploaded by sweet sweet life.
I’m working on finishing the update from the appointment with my new LLMD and it’s taking me a lot longer to finish than I had expected. It’s slow going as I’m patient with myself, my memory, and my symptoms.
In the meantime I have two things to share with you. First, this lovely photo I found this morning. I have always loved this poem! It was the inspiration I needed and just the reminder I wanted today; I hope you enjoy it too!
Secondly, I wrote a new piece this week that I’d like to share with you. I like to think of myself as an aspiring writer, but with Lyme I feel that most of my creative writing has gone on the back-burner. I haven’t written a thing resembling poetry, stories, or anything remotely creative in ages. But these words just poured out of me in a way that I was craving. I’d like to invite you to read this.
I’m calling it my break-up letter with Lyme.
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September 16, 2011 at 2:01 pm
A. P. Alessandri
Hi Molly,
I just came across your blog and this post.
First of all, what a beautiful poem!
Second, I applaud your courage in tackling this invisible illness. It is beyond trying, I know. While I don’t have Lyme, I have another invisible illness, undifferentiated connective tissue disease (UCTD), and fibromyalgia.
I hope you get relief soon, and that your new doctor can get you on the road to remission!
Best of luck to you!
September 17, 2011 at 11:55 am
Barbara L. Baker
Perfect words. Molly. Perfect.
September 20, 2011 at 4:40 pm
Kim
That’s so funny… this quote is posted outside of my office, too. :)
October 17, 2011 at 1:16 pm
Marie Hope
I just wanted to add a quick comment. I just started following your blog and I find your story truly inspiring. My friend and her entire family all contracted Lyme disease. They went through numerous antibiotics and medications. As well as LLMD’s. They all did go through Herxiemer reactions, felt some relief but then had all of their symptoms return. They then tried Hyperbaric Oxygen Therapy. They all did 2 courses of 40 treatments and now they all have no symptoms and it’s been 4 years since they concluded their treatments. I understand that the treatments have to be in “hard chambers” that can go to higher pressure and not soft bag chambers as the soft chambers are not effective against the Lyme. The therapy can get expensive and I believe they had to travel to Larkspur, CA for their treatments, but it is nothing compared to the cost of antibiotics and infusions that don’t seem to work. Just putting this out there because I feel anyone undergoing the long strenuous journey of Lyme should know about it. Thanks