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Hey everyone! It has been so long since I felt able to write, it’s good to be finally back to normal. I’ve missed this nightly ritual in the past weeks. And, let me just thank all those that continued to check up on me while I was “missing in action”! As I’m sure most of you know, or have presumed, I had a pretty nasty and scary herx reaction that lasted 3 weeks. I’m much better now, and have been steadily improving for a week.
It was horrible though. I had heard and read about other’s herxs but until you’ve had a bad (*read that as mind numbingly awful and unbelievably painful) one yourself, it’s truly hard to appreciate the meaning of the words. But, I survived. Granted, it took a month’s supply of migraine meds, equal amounts of pain killers, a trip to the ER, several visits to my chiropractor, as well as a new (lesser) dosage of antibiotics and a heck of a lot of detoxing. But I did it! Thanks to my amazing parents who were there for me the entire time. I couldn’t have done it without them.
My latest road bump as been double vision. It’s been, oh almost 3 weeks now (do I sense a pattern??) I think. It started during the herx and we just assumed it was part of the migraine. But that didn’t make sense when the migraine finally settled down and I was still seeing people with 2 heads and walking into walls. Thinking it over it actually started beforehand with blurry vision, that gradually became double. It’s been tough, especially with my already-present vestibular disorder that causes dizziness. Let’s hope this doesn’t last too much longer… But seriously I have been improving. This week I’ve been able to keep the eye patch-wearing to a minimal amount and have discovered what triggers it so I’m better able to stave it off. I’ve got an appointment with my LLMD (Lyme Literate Medical Doctor) this week, so we’ll see what she has to say about it. Nice photo though huh? I’m thinking the black is a little boring…. I’ll see what I can do about decorating it :) It needs something…. thoughts anyone? I’m thinking of painting one of those dizzying spirals on it so that everyone who looks at me gets just a wee bit dizzy… fun, no?!
In other news, I’ve been dizzy and unbalanced (did I say that?) enough to break out a cane. We didn’t have one that fit me anymore so I borrowed my brother’s extra one. It’s nice to have, but I hate using it. I always did. For one thing, it’s beyond me on how you walk with them. I mean, really, it’s harder than it looks! I’m also beginning to get more and more into the book Cure Unknown. My LLMD suggested I read it as soon as my diagnosis was confirmed, but I just haven’t been too excited about it until now. I’ve heard enough about it though to keep me reading, little pieces at a time. It’s finally all clicking in and making sense. It’s actually a pretty good book; I’m glad we bought it. It’s a good reference. As soon as I’m done with it it’ll be my mom’s turn.
More good news, it’s my spring break this week! I’ve got a million things to do and only a few days to do them in. We’ll see how that works out. It will give me the time to get back my blog however!
“Through humor, you can soften some of the worst blows that life delivers. And once you find laughter, no matter how painful your situation might be, you can survive it.” – Bill Cosby
Yup, I admit it. I had a rollercoaster kind of day today. It started out frustrating, became just plain out fun, and ended on the bittersweet note of vertigo-to-be.
I walked down to my favorite local coffee shop with my mom this afternoon to meet up with one of the amazing people who agreed to meet with me to sign my forms for my scholarship today. It was so nice to be walking outside. The sun was shining, the snow was melting, and I was actually able to wear my coat unbuttoned! Woohoo! (I love spring… don’t say I never warned you…) I also really appreciate that today I was actually able to walk down there. Some days I simply can’t and I’ve learned to appreciate the ones I can.
After I got my forms signed, my mom and I realized we had over an hour to blow before the other form signer was due back at our house. Oh what to do? Well, go shopping at our favorite local shops of course! I made it into the craft store and bought a pattern for a wallet (we’ll see if I can make it out of fused plastic!!) and a beginner’s quilting kit made up of retro fabrics! I’m so excited about both of them! I also picked up a cute new sweater at the vintage clothes store. That’s my favorite type of shopping. No cars, no crowds, no insane shopping malls that are one of a dizzy gal’s worst nightmares; only the friendly small shops that are just a block away. What’s not to love?
So I was able to get the second form signed afterwards, and to celebrate I dug out my new sewing machine to make a few test quilt squares. A few hours (and many tense moments of frustration) later I was happily sewing away at my crooked squares made from my stash of recovered fabrics. And my defense to the crookedness? I say: “Dizzy people see the world differently. So deal with it.” Or, I’ll at least deal until I can finally pull off a straight one. But by that time I’m sure I’ll have moved onto bigger and better crooked and a skewed undertakings.
I was also able to receive the letter of reference I needed from my Girl Scout leader. She and Em worked on it last night and tonight, and sent it over. It’s so sweet you guys, thanks again for the amazing compliments! I’m speechless by it. It’s printed and ready to be sent off tomorrow as soon as I get a hold of my transcripts for the past 3 years. Yeah. I know. Easier said than done. Wish me luck, I have a feeling I’ll be needing it.
So, sounds like a great day right? It totally was! But, here’s the anticlimactic part. I’m ending the day after barely being able to eat anything all day. The nausea is kicking up, and it’s not pleasant. My mom made an awesome dinner of crab bisque and I could only manage a half a bowl. Sad, I know. I forgot to eat lunch and half-way through dinner I was blind sighted by a wave of nausea and dizziness so strong that I was positive the room was going to start spinning around me at any minute. I haven’t had vertigo in over a year, and I’d like to keep it that way.
So here I am, typing even though my hands, wrists, and arms are aching. I’m drinking hot water with lemon juice squeezed in it because it’s the only comforting nausea remedy that I know of. Listening to music that’s just loud enough to distract me from my headache, but not loud enough to make it worse. And avoiding turning out the light and going to sleep because I know that the minute I’m immersed in the darkness I’ll begin spinning, twisting and turning, and gripping the bars of my loft bed struggling to relax.
I think I’ll do some reading tonight. I’ve just begun a new book in the Mary Russell & Sherlock Holmes series written by Laurie R. King (which I’m addicted to by the way!). With any luck I’ll read myself tired, which wont be hard to do tonight. That I’ll admit too.
“Never, never, never give up.” ~ Winston Churchill
Ah, another week completed. And I survived it folks. Week two on antibiotics for my Chronic Lyme Disease has drawn to a close, and what a crazy week it was!
The only reason I’m able to tell when I’ve finished up another week is because I run out of days with pills in them in my 7-day pill container. I love this thing! It has seriously made my life so much easier. I no longer have to open up who knows how many bottles each night, and I’m actually remembering to take my morning medications which is definitely a plus!
I’m still working on getting a routine down that will work for me. I absolutely hate set schedules and times, but I’ve discovered over the years that if I don’t work on creating one for myself I really do suffer. I’ll forget to take meds or supplements, or I’ll forget that we actually have an exercise bike in the basement that I could be riding, or that I have English homework due on Friday. So, instead I’m teaching myself to develop routines that work for me. I take my meds at the same time, I check my classes online every day and work on them in a certain order, and I also have times during the day in which I just know that I need to stop working and just rest. (I’m still working on that whole exercise bike thing…) As much as I hate them, I know I need them. It’s a process… acceptance is the first step, right?
So to continue working things out I’ve added my meds and my supplements to my daily computer calendar so it will actually remind me to take them at a certain time if I set it to. Anyone guessed yet that I haven’t set it quite yet? I’m a bit of a stubborn person… and I tend to adopt the attitude of “I’ll do it myself!!”. For better, or for worse, we shall see.
I’m feeling alright, overall. Some odd symptoms are sneaking back now and again, but so far they’ve been manageable. I’ve still been able to work on my course work for school, I’m really happy about that. This week is the final week of the semester however, so I’m looking forward to the long weekend we’ve got after Friday afternoon. I’ve got plenty of Girl Scouts work to catch up on, and some books I’m dying to just settle down and read for a few hours.
And, who’s not excited about inauguration day?! It’s so soon and yet so far away. I wish I could say I wanted the time to fly by, but I’d really rather it didn’t so I’ll have some time to breathe and finish up my finals projects and papers!
But, I’ll not get a head of myself. I really can’t wait for tomorrow morning though. I’ll be up bright and early tomorrow for an acupuncture appointment. I’ve been looking forward to it for weeks. It’s been so long since my last appointment that I can’t even remember when it was! (I’m restraining myself from further comment…)
Anyway, ’till tomorrow,
“Wonder is the beginning of wisdom.” ~Greek Proverb
Day 2 of my adventure is almost done, and as I sit here tonight contemplating it I think I’ve come to the conclusion that it was a productive one. I do love that feeling! Don’t you?
I spent most of the day doing what I love: reading and writing. I had some work to finish up in my Creative Writing class before my winter vacation ends on Sunday. It was nice to have the house to myself this afternoon to work on things. It was so quiet and peaceful. I woke up early this morning, well ok not early per say…but early enough for me. I’m beginning to figure out a routine that works in all of my meds, vitamins, and supplements. I’m trying to take them at the same time each day…easier said than done! So far so good, but hopefully it will only get easier. My mind is so muddled it seems these days that keeping things straight isn’t quite my forte. And, I’m trying not to think about the fact that I’ll have to continue getting up early….. (*gasp!*) I don’t think I’m going to get much sympathy on this issue though so I’ll move past it :)
My doctor warned that once I began taking the antibiotics I would start experiencing a Herxheimer reaction. I’m a little fuzzy on the exact details, but I’ll explain it as well as I know. A Herxheimer reaction occurs when the toxins from the disease are released into the body as the Spirochetal bacteria die off. This happens faster than the natural detoxification process in our bodies, and can lead to an increase in symptoms. We’re not sure how I’ll react, but I think today is a little soon to be looking for any results from that. I’ll make sure and keep people updated as things progress.
I’m looking forward to tomorrow, though. I’ve more writing I’m working on and we have plans for a family dinner out to Jax to celebrate the holidays. Better late than never, right? We were scheduled to go out last Tuesday, but I caught that bug that’s been going around (thanks mom!) and was too sick so we had to cancel. Now I’m feeling better, but my dad seems to have caught it! I tell ya, life in my household is never boring. No worries, there’s more to come.