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I’m off to the Capital!
Tomorrow afternoon is the senate hearing for the Minnesota Lyme bill, otherwise known as S.F. 1631. The bill is striving to protect the rights of both doctors and patients in the treatment of Lyme Disease.
I’m very curious about this process. It should be pretty interesting, if not madly overwhelming.
Wish us good luck!
More details can be found here and here.
I’ll post a follow-up as soon as I can!
(2-9-10) UPDATE: The hearing yesterday went about as well as I could have expected! It was a long, drawn out few hours filled with both Doctor and patient testimonies. We certainly packed the house, that’s for sure! It was surreal to see so many other people there who were affected by Lyme; but it was a reassuring feeling as we got down to business.
Long story short – The bill was approved after a 5 to 3 vote on the senate committee level, and will now be passed onto the senate floor!
Oh, sweet victory!
We’ll take them as they come, and hold our breath as we wait for the legislative process to continue. I’m so happy that I was able to attend the hearing, and see this process with my own eyes. Parts were emotional, irritating, nerve-wracking, and overall hilarious. But in the end it was worth it.
This article has been floating around my Lyme circles today on Facebook and Twitter. Check it out!
Legislators hear testimony about treatment of Lyme disease
“May good luck be your friend in whatever you do and may trouble be always a stranger to you.” – Irish blessing
Just wanted to give all a heads up! I’ve got my monthly-ish appointment with my LLMD {very early} tomorrow morning. I feel unprepared for it, but we’ve been waiting for this for a few weeks. So many little things have piled up symptom-wise, and I of course, forgot to write them down. I’m doing my best to remember them all tonight.
It’s been a rough few days since late last week. I was able to have fun over the weekend though. My soon to be sister-in-law had her shower on Friday, and my aunt and grandma were able to make the trip up to come too. It was a lot of fun! We met and mingled with a lot of her family, played some games, and enjoyed ourselves. I was pretty overwhelmed by the time it was over, but it felt good to be there. Then on Saturday we found time in between the rain storms to get the St. Paul Irish Fair. It’s one of my favorite summer events, and I look forward to it so much! This year we got there in time to hear Romantica play, which I was hoping we would. That’s probably the only concert I’ll make it to all year! I only lasted a few hours, but again, it felt good to be there. We were frustrated by the lack of gluten-free foods available though. I made do with french fries. Of course they didn’t have corn beef and cabbage, that would have been perfect! And I’m still confused as to why they didn’t…
However, this week I’ve taken it easy. I’ve barely gone a day in the last two weeks without abdominal pain, and it’s been getting worse. Today was better, so that was a relief. I’m having chest pains almost every day as well. They come and go. And now more joints are bothering me. Today my wrist and elbow acted up. Totally new symptoms. So these are all things to report tomorrow.
I’ll post an update as soon as I’m able to!
Peace and healing, molly
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