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It’s over now, but I love this movement!

To quote their website:

“For the first time in history, people of all ages, nationalities, race and background have the opportunity to use their light switch as their vote – Switching off your lights is a vote for Earth, or leaving them on is a vote for global warming. WWF are urging the world to VOTE EARTH and reach the target of 1 billion votes, which will be presented to world leaders at the Global Climate Change Conference in Copenhagen 2009.

This meeting will determine official government policies to take action against global warming, which will replace the Kyoto Protocol. It is the chance for the people of the world to make their voice heard.”

 

Today people all over the world turned off their lights at 8:30 PM, local time, to support environmental awareness of global warming. And, I (being as forgetful as I am with Lyme-brain) didn’t remember until it was half over! But, for that last half hour my house was dark. I’m telling ya!

 

Here’s the photo I created on their website:

 

It shows where I am in relation to all those others who were registered participants in Earth Day 2009. Remember all you can see there is North America, the rest of the globe was pretty yellow too!

I’ll leave you all with that picture and those beautiful thoughts for now. Let’s hope tonight had an even more powerful impact! I’m beat after a very busy day. I’ll update tomorrow!

 

Peace & awareness to all, molly

 

“The good news is, we have everything we need now to respond to the challenge of global warming. We have all the technologies we need, more are being developed…. But we should not wait, we cannot wait, we must not wait.”  ~ Al Gore

It’s all about the little things. I’m thoroughly convinced. I was reminded of it today as I was opening my Yogi Tea and read the little saying on the paper. I love those things! I wish I could open all the teabags in the box just to read them all! Mine this morning read: your head must bow to your heart. They just make you think, don’t they?

 

So what did I do? I remembered that I had the daily affirmations application on Facebook. I check it everyday for one that speaks to me. Every once and I while I’ll send one to a friend, or my mom, or anyone that an affirmation speaks to me about. But for the most part I use it myself.

 

I’ve always been a positive person, and affirmations just make me smile. They can hold so much purpose in our lives. It’s really quite a thought to think about. The particular affirmation that spoke to me today was: Everything is getting better every day. I just love that! And really, it’s so true for me. Every single day I’m healing and working to get rid of my Lyme Disease for good. And everyday I’m one day closer to doing it.

 

I created myself a desktop photo to remind myself of it since I spend most of my life on my computer. My desktop serves as a daily reminder to me as to what’s close to my mind, or my heart currently. So here’s the photo I’ve created. I took the photo itself in California last year while on vacation. I’ve always loved it and now it holds an even greater purpose.

 

I hope this affirmation brings some hope, and some peace of mind to someone else who needed it as much as I did.

 

Peace, molly

That only sounds a little menacing! As I promised, here’s my update from my monthly LLMD appointment. It was a few days ago, I admit. But I was thoroughly exhausted that night as well as yesterday. I blew off some steam in the meantime by sewing up my own little storm. :)  And what did I make? A headband that turned out to be too small and a beautiful new pillow! If I’m feeling ambitious I’ll see if I can post a photo later.

 

Anyway, back to my update. It was a very busy, and time sensitive schedule that day. First my dad rushed home to take me to my eye doctor. It was suggested (by just about everyone) that I see him so that he could dilate my eyes and check them out a bit closer. He thought he might be able to see if there was something causing the double vision of late. Turns out he did find some signs of inflammation in my eyes and some small hemorrhages.

 

His exact words were: “ I saw some small hemorrhages, but it’s nothing major. Lets just make sure she comes in for another dilation in a few weeks to keep an eye on it.”

 

Hmmm… as I told my dad, I don’t associate “nothing major” with the word “hemorrhage”! It seems to me to be something that’s not at all good and should be avoided. But, what to I know? So, I go back in two weeks and we’ll see what happens. In the meantime we’re getting a second opinion by a Lyme-literate optometrist recommended by my LLMD when I told her what he had said. Which, leads me into the second phase of that time-crunched day….

 

After that appointment my dad rushed me downtown where he dropped me off at my LLMD’s office to meet my mom while he went on to a meeting. And my mom and I preceded to meet with my LLMD. (Very synchronized!) We talked about my latest symptoms and discussed my options for my treatment plan.

 

She wants me to cut down (majorly) on my refined sugars and carbs. And that means a switch to rice pasta, and no more French bread. Eating those foods allows yeast a hospitable environment in my body since I’m taking so many antibiotics. I’ve got be careful about my yeast levels since the antibiotics are killing off not just the bad bacteria, but the beneficial ones as well.

 

Since I’ve been blacking out pretty frequently after I stand up, she’s suggested that I need some additional adrenal support as well. So I’ll be up-ing my intake of vitamin C (Smoothies!!) and I’ve begun drinking licorice root tea. It’s not bad; it’s got a very raw taste at first and then suddenly it’s cooling and coats your mouth and throat. I think it takes some getting used to!

 

I’m also going to begin taking Samento every day. I don’t know much about it, so I’ll let you know as soon as I do. What I know so far is that it’s a natural antibiotic that has been shown to fight Lyme. Sounds good so far! I just have to be careful to start with small dosages and work my way up to higher ones slowly because it can cause herxs as well. My LLMD has also requested that I start taking a lipoic acid supplement every day. We’re looking into that this weekend.

 

My list of everyday supplements, medications, vitamins, and practices is getting longer! That’s for sure. I’m struggling to keep track of it all, but so far I think I’m doing pretty good.

 

Peace, molly

 

“Everything is getting better everyday.”

I told you I wanted to decorate it, didn’t I? I warned you. So that’s what I did today, my first official day of Spring Break, I painted my boring, black eye patch! I cleared off the table, found my acrylics, and set to work. Here it is, in all it’s glory:

 

Painted Eye Patch

 

It was fun! I love painting, but I never seem to get around to doing it. And, I never know what to paint once I start. But this was fun. I wanted to give people an idea of both my personality, and a clue to how I normally feel. I don’t think anyone will get dizzy looking at this, but hey you never know. At least it makes me smile, and that’s what really matters. I admit it!

 

I woke up this morning and just knew it was going to be a long, rough day. Turns out it was raining, and still is. I climbed down from my loft bed and made it all the way onto my couch, which is underneath it, before lying down again. The rest of the day had it’s ups and downs, but to be honest I’m exhausted. No other words I can think of describe the feeling any better. It’s energy-consuming to just get up and down, walk a flight of stairs, or take a bath. I often black out temporarily when I stand up, and I’m winded after walking down a flight of stairs. My parents are getting things for me, and doing what I don’t feel I can. My hands shake so much at this point that I often choose not to chop or cut anything. It’s hard. I’m such an independent person that it’s difficult to admit I need the help.

 

I’ve got another doctor appointment with my LLMD tomorrow afternoon, and an appointment with my eye doctor before that to dilate and check out my eyes because of the blurry/double vision. I’m looking forward to seeing my LLMD; I’m interested in hearing what she has to say about the past few weeks. I’ve been on my new meds for about 3 weeks now. I’ll  make sure to update you all about it, no worries!

 

I do have some good news though! I love sharing it almost as much as I love discovering it. If you remember last month I was talking about the “incessant ringing” in my ears. It was relentless, and enough to drive me crazy at times. It was one of the first symptoms I ever had, oh about 6 years ago now. It was off again, on again since then but came on full force after I began treatment for Lyme at the start of the year. I’m thrilled to announce that I realized this week that it was finally quiet. There is no more ringing! I can hear myself think again! (That is, when I can think clearly. But, we’ll just go with it!) The last herx must have cleared it up. One theory is that you look for old symptoms to crop back up again. Once they do, you live them out until they clear themselves away with the antibiotics. And, once they’re gone they’re gone forever! I hope the ringing is gone forever. Wouldn’t that be nice?

 

Peace & healing, molly

 

“Painting is easy when you don’t know how, but very difficult when you do.” ~ Edgar Degas

Hey everyone! It has been so long since I felt able to write, it’s good to be finally back to normal. I’ve missed this nightly ritual in the past weeks. And, let me just thank all those that continued to check up on me while I was “missing in action”! As I’m sure most of you know, or have presumed, I had a pretty nasty and scary herx reaction that lasted 3 weeks. I’m much better now, and have been steadily improving for a week.

 

It was horrible though. I had heard and read about other’s herxs but until you’ve had a bad (*read that as mind numbingly awful and unbelievably painful) one yourself, it’s truly hard to appreciate the meaning of the words. But, I survived. Granted, it took a month’s supply of migraine meds, equal amounts of pain killers, a trip to the ER, several visits to my chiropractor, as well as a new (lesser) dosage of antibiotics and a heck of a lot of detoxing. But I did it! Thanks to my amazing parents who were there for me the entire time. I couldn’t have done it without them.

 

My latest road bump as been double vision. It’s been, oh almost 3 weeks now (do I sense a pattern??) I think. It started during the herx and we just assumed it was part of the migraine. But that didn’t make sense when the migraine finally settled down and I was still seeing people with 2 heads and walking into walls. Thinking it over it actually started beforehand with blurry vision, that gradually became double. It’s been tough, especially with my already-present vestibular disorder that causes dizziness. Let’s hope this doesn’t last too much longer… But seriously I have been improving. This week I’ve been able to keep the eye patch-wearing to a minimal amount and have discovered what triggers it so I’m better able to stave it off. I’ve got an appointment with my LLMD (Lyme Literate Medical Doctor) this week, so we’ll see what she has to say about it. Nice photo though huh? I’m thinking the black is a little boring…. I’ll see what I can do about decorating it :) It needs something…. thoughts anyone? I’m thinking of painting one of those dizzying spirals on it so that everyone who looks at me gets just a wee bit dizzy… fun, no?!

 

In other news, I’ve been dizzy and unbalanced (did I say that?) enough to break out a cane. We didn’t have one that fit me anymore so I borrowed my brother’s extra one. It’s nice to have, but I hate using it. I always did. For one thing, it’s beyond me on how you walk with them. I mean, really, it’s harder than it looks! I’m also beginning to get more and more into the book Cure Unknown. My LLMD suggested I read it as soon as my diagnosis was confirmed, but I just haven’t been too excited about it until now. I’ve heard enough about it though to keep me reading, little pieces at a time. It’s finally all clicking in and making sense. It’s actually a pretty good book; I’m glad we bought it. It’s a good reference. As soon as I’m done with it it’ll be my mom’s turn.

 

More good news, it’s my spring break this week! I’ve got a million things to do and only a few days to do them in. We’ll see how that works out. It will give me the time to get back my blog however!

 

Peace, molly

 

“Through humor, you can soften some of the worst blows that life delivers. And once you find laughter, no matter how painful your situation might be, you can survive it.” – Bill Cosby

Hello all! Well, this is just a quick little update for you all, because as some of you have noticed, I’ve been missing for the past few weeks. I started a new antibiotic 2 weeks ago which about 12 days ago caused a major herx reaction. It’s been a miserable, and very long 2 weeks. It was the worst migraine I’ve ever had, and I’m still working on detoxing to get rid of it. I’ll explain in a few days, but I just wanted to give you all a little heads up as to what’s been going on.

 

Thanks for checking up on me!

Peace, molly

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