Oh my. I may have escaped La La Land – for now. It was a tough day today. I felt a complete disconnect from my mind and my body. So strange, especially after having a great craniosacral appointment this afternoon. Anyhow, let’s hope this breakthrough can carry on until tomorrow! I could use a day with mental clarity. It helps to be able to think through the fogginess every few days. I was just given an extension on two of my hardest classes {I love my teachers, have I said that?}, but I still have a lot to do and I’m starting to falter. One step forward and two back.

Same old story.

But, I’ve realized I’ve had some improvements lately! Yes! I love sharing those. Remember I said in my last post that I had some treatment updates? If not, it’s ok, I had to go back and re-read my post before I did. But, I do!

First, I’ve finally been cleared to begin taking Nattokinase. You might have heard some chatter about this supplement before. I know I have. As far as my understanding goes, it will break up the fibrin clots in my body so that the antibiotics can get to the newly exposed bacteria.  Sounds good, right? This enzyme has also been talked about in conjunction with the Lyme “biofilm”. I’m not going to touch on this only because I haven’t done the research on it. I really know nothing about it. But, if it helps with that – awesome! No complaints here. My LLMD suggested Nattokinase as an option way back in March, or so, but we couldn’t order it right away. Turns out that by the time we had received it in the mail I was advised against taking it. That was during my ICP crisis, and they didn’t want to chance any bleeding into my eyes. Nattokinase does act as a blood thinner.

Secondly, I’m excited to be adding Turmeric to my daily arsenal of supplements. In very high doses, this herb has been found to reduce inflammation and pain in the body. I’m all for pain relief these days. My pain has been flaring up more than I expected this fall. It’s been bad. So I started 900 mg of Turmeric three times a day last week. By today I realized that my pain level was down to a 6 when I went into craniosacral this afternoon! {My pain levels have been around 8 & 9 consistently this fall}. Amazing! Let’s see if this is a good fit for me. I really, really hope so.

Turmeric

These pills are HORSE pills though. I mean it. I measured! It’s practically an inch long, no joke. I have photographic evidence! Sorry for the blurry cell phone picture, my camera died this afternoon. But look! Sad thing is that I don’t even feel it going down. 

 

And last but not least, another supplement has been added to my polka dotted bag o’ meds. I’m now taking 5-HTP each night to help me regulate my sleep cycle again. It has been shown to increase serotonin levels. Over the past few weeks my sleep has been fit-full. I would wake up exhausted and feel groggy for hours. I realized yesterday that it must be helping, because I’ve been so tired at night that I’ve been falling asleep before doing any reading. I never do that! I’m not only just falling asleep, but I’m staying asleep all night. A full night’s sleep – imagine! Oh it feels good.

I can’t wait to go back to my LLMD in a few weeks with all of these new realizations! Progress feels so good, even if I’m still pushing my way towards the end of a very, very long herx. I’m also waiting to hear what news my LLMD has brought back from the ILADS conference over last weekend. Hopefully some new ideas for my treatment plan.

I had a Lyme co-infection test near the end of the summer and it came back with slightly positive Babesia result. So my running infection tally is now Lyme, Bartonella, and Babesia. Bartonella and Babesia are common tick-borne infections often found aside Lyme disease.

So, some good news, some bad.

For now I’m still thinking of that glass as half full.

Peace and healing, molly

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