You are currently browsing the monthly archive for September 2011.

emily and isabelle, originally uploaded by sweet sweet life.

 

I’m working on finishing the update from the appointment with my new LLMD and it’s taking me a lot longer to finish than I had expected. It’s slow going as I’m patient with myself, my memory, and my symptoms.

In the meantime I have two things to share with you. First, this lovely photo I found this morning. I have always loved this poem! It was the inspiration I needed and just the reminder I wanted today; I hope you enjoy it too!

Secondly, I wrote a new piece this week that I’d like to share with you. I like to think of myself as an aspiring writer, but with Lyme I feel that most of my creative writing has gone on the back-burner. I haven’t written a thing resembling poetry, stories, or anything remotely creative in ages. But these words just poured out of me in a way that I was craving. I’d like to invite you to read this.

I’m calling it my break-up letter with Lyme.

Before You Go Away

I have both exciting and nerve-wracking news share with you! My current LLMD has been recommending that I seek a consult with a more specialized  and experienced LLMD since last winter. We’ve been putting off this move because, quite honestly, the expense of a non-insured LLMD is astronomical. However, my health has been steadily declining since January of this year. In fact, I’d go so far as to say that 2011 has been one of my absolute worst years in the course of my illness. My LLMD has admitted that I’m beyond her abilities at this point.

We took the plunge.

An appointment with a new LLMD was scheduled. The only problem? I was distraught to hear that I wouldn’t be seen until December. I knew I didn’t want to go on living like I have been. I hoped for something – just something – to surface. 

And, here comes the exciting news – it did! This week we received a call saying that if I wished I could take an appointment that was open after a cancelation. We took it!! I see the new LLMD next Wednesday, the 7th of September!!

Please keep me in your thoughts and prayers sending positive, healing vibes for next week’s appointment! I’m hoping to receive some expert guidance and a new treatment protocol.

At the moment I’m feeling overwhelmed with the intense paperwork required, the tests I haven’t had done yet, and the thought that I have a 3 hour appointment ahead of me where my whole story and every single symptom from the last three years will need to be retold and analyzed. I’m excited, nervous, and crossing my fingers that this doctor will finally hold the answer I so desperately need.

I’m taking many, many deep breathes, drinking tea to soothe my stomach and my soul, trying to recapture lost memories, and generally taking this all as it comes. One action, one thought, one moment at a time.

 

With love,

molly

 

“May the pain you have known and the conflict you have experienced give you the strength to walk through life facing each new situation with courage and optimism.”

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