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By my standards today was a wonderful day! After the hell that was yesterday I enjoyed every small and happy accomplishment today: Blueberry muffins, pink toe nails, washed hair, homemade popsicles, and being coaxed by my lovely best friend Gracia to go to an outdoor concert in the park tonight which meant time spent with my mom and my cousin, and last but not least… swings!
Side note: I giggle when I swing. Don’t you?
Smiles, laughter and joy will be remembered from today. The symptoms? They’ll be forgotten.
Anyone ever read their horoscope? I don’t base my life on them, but I do occasionally like to take a peek at it in the morning paper. This was mine this morning. It’s SO true. I love it. Usually they’re super generic. True, this one is also. But I love it all the same. It’s a beautiful reminder, and message :) Just wanted to share!
Well folks, my face is still twitching away. However, thankfully we seem to have tracked the problem down. First my physical therapist drew attention to my nervous system, then my local MD traced it to an adverse medication reaction which was the root cause of the nervous system being in the state it’s in, and then finally an emergency phone consult with my LLMD who (I’m grateful) agreed with the theories and decided on a plan of action. I love it when my practioners all work together. This sense of synergy really benefits the patient!
So this week I’m working on getting these symptoms calmed down. I really couldn’t continue to function in the state I was/am in; it’s just too much. I felt that I was continuously holding back the floodgates. Any time I relax my muscles, especially those in my face, the spasms start. Every. Single. Time. I’m so tense right now it’s ridiculous.
When my muscles start going it starts in my eyes. They begin to flutter. Then my right eyebrow and surrounding muscles start. It moves next to my right eye, then down to my lips. Usually last to hit is my nose. It twitches back and forth and every time it does all I can think of is Bewitched!
Wouldn’t it be fantastic if I could make some magic happen in this scenario?
I’ve always wanted to be able to twitch my nose like Samantha and clean up a mess, or find a lost object. Maybe I’d magically fill my pill containers or change the flavor of my Mepron. The list of things a girl with Lyme could do if she could “twitch” her nose with magic is endless!
The mind boggles.
I could make the battery on my kindle last longer, bring something I’d forgotten in another room right to my lap, turn off the lights off when they trigger my headaches, make my favorite movie play on tv, have the dishes clean themselves, or simply just twitch up a cup of tea when I’m feeling like a cuppa.
Endless, the list is endless I tell you!
What would you do if you could magically “twitch” your nose Samantha style?
My mom and I were discussing this in the car today. Suddenly we realized… if I could “twitch”, then I could call up Dr. Bombay!
Remember how to do it? A witch simply had to call out:
“Calling Dr. Bombay! Calling Dr. Bombay, Emergency! Come right away!”
And magically Dr. Bombay would appear in a cloud of smoke right then and there. He’d be dressed in an outrageous outfit and be understandably miffed from being dragged away from whatever it was he had been doing at the time – usually his nurse.
But then he’d pull out the professional stoppers and get right down to business. The quicker the better, so he could get back to that nurse.
He’d listen to the problem and pull out some magical, mysterious witchdoctor examination tool. Wasn’t there a keyboard he played that did something?
Before long he’d know exactly what the problem was and how to fix it! I think my chances to be cured would be much improved with Dr. Bombay! He’s got magic on his side. Centuries and centuries of wisdom. And a small flair for the dramatic.
I’d much rather have Dr. Bombay consult on my case than Dr. House (as much as I loved him) any day!
Only it was never really that simple… more often than not he required some hard to find ingredients to cure the illness. There was a sleazy witch apothecary who sold potions and ingredients. Or there was always the chance that somebody would need to go back to the 16th century or something in order to get an ingredient like the tail feather of a dodo bird.
Somebody would need to go off in search of the ingredients while the sick person waited at home, and hopefully didn’t get worse. Dr. Bombay would disappear, only to be called back when all the ingredients were gotten.
My mom has volunteered to go off on the quest in search of the hard to find, magical ingredients to cure me! She’s prepared to battle a dodo bird for it’s tail feather or blend into the king’s court in the 16th century.
What a mom!
Now I just need to get the ball rolling… next time the muscle spasms come on I’m hoping not just for a twitch, but I want a “twitch”.
And you better bet I’ll be thinking, “Calling Dr. Bombay! Calling Dr. Bombay, Emergency! Come right away!” .
All my love,
The chaos of my life is channeled in the kitchen. I pour and I mix. I measure and I eyeball. I trust. I challenge. Not everything turns out, but I enjoy the journey.
I adore food and cooking. I find cooking & baking for food allergies to be a challenge that I relish. Here’s a few quick photos of what I’ve been playing with recently.
Blueberry Almond Oatmeal Breakfast Cake
I wish I had more photos, but usually I forget! Recently I’ve also made and absolutely enjoyed this watermelon salad, potato mac salad, onion hash w/ added fresh chives, apple cinnamon jicama breakfast porridge, I fell in love with this simple, yet filling spring vegetable stew w/ pistou, these thumbprint cookies deserve their awe-inspiring title, this chocochia “milkshake” hit the spot, baked donuts, and rosemary & olive savory scones.
People often ask me about my diet. My biggest pet peeve? Please, please don’t ask me “What DO you eat?” or “What’s left to eat?” after I tell you about my diet. I take it seriously, and you making a joke about it won’t help.
It’s intense, but perfectly do-able. I’m eating better now that I ever have! It’s a joy to eat real, whole foods.
My diet is as organic as possible since I have an inability on the DNA level to detox chemicals well. I no longer eat gluten, dairy, soy, corn, processed sugars, chicken or eggs. I joke around that I’m a meat-eating vegan, since I am a vegan baker. I use stevia, raw honey, pure maple syrup, dates & very rarely coconut sugar as sweeteners in my cooking and baking.
It’s been a long, tough road but I love my diet. Some days I’m frustrated and tired of it all. I’ve fallen to the kitchen floor in frustration some nights while trying to find dinner. It is very hard to stay on top of, but I know that it has made a huge impact on my daily life and my health. I feel better. I feel much, much worse if I cheat and eat something I’m intolerant to. It’s as simple as that. Period.
More food talk to come!
Happy eating :)